Thursday, May 31, 2012

Insulin Pump Therapy vs. Shot Therapy

What is Type 1 Diabetes?

From the Animas (our pump company) website:


In type 1 diabetes, the body no longer produces its own insulin. Insulin is created in the pancreas by 
cells called beta cells. When a person develops type 1 diabetes, these beta cells are being destroyed 
through an autoimmune response.

Insulin is necessary for the body to be able to correctly use blood glucose. Without insulin, blood glucose can't be used, so the body doesn't get the energy it needs.

Without insulin, blood glucose simply stays in the blood stream. A normal blood glucose level — that is, in a healthy person without diabetes — is about 100 mg/dL. It is not uncommon, however, for a person with type 1 diabetes to have blood glucose levels four to six times that amount at the time of diagnosis! These high blood glucose levels leave the person dehydrated, thirsty, hungry, rapidly losing weight, drowsy and often nauseated. In extreme cases, a person might become unconscious. A resulting condition called diabetic ketoacidosis, if not treated immediately, can even lead to death.

When you have type 1 diabetes, you must inject insulin. The discovery of insulin in 1922 was a landmark in medical history. Before injectable insulin was available, type 1 diabetes was fatal. But medical insulin makes it possible for people with type 1 diabetes to live long, healthy lives.


When TJ was diagnosed (at 15 months), his blood sugars were in the 700's. His current target blood sugar range is from 100-200. 


He had a lot of those symptoms. He was insatiably thirsty, peed through every single diaper, went from 1 nap to 3 naps a day, lost 3 pounds, and was lethargic any time he was awake. The Spirit definitely prompted me to order a blood test. This was out of the ordinary wrong. Yes, he had just gotten over the common cold and had his immunizations and an ear infection, but this was different.



Diabetes was always a disease that I avoided learning about in school because I thought it was too complicated with high and low blood sugars and pancreas and insulin and glucose and I just didn't want to wrap my head around it. While in the ICU at Children's Medical Center here in Dallas, I asked the doctors to explain diabetes to me like I was a 5 year old. I really just wanted to understand at least what was going on with my son. Here's how they described it (if the other description was still too much):

Your pancreas makes insulin which is a hormone that acts as a key to your cells. Cells have doors that need to open to bring in sugar. That sugar can then be used as energy once inside the cell. If you stop making insulin, your cell doors are never opened and never get the sugar to make energy (that's the reason why he was so lethargic). The sugar stays in the blood and makes you sick.

Type 1 diabetics are insulin dependent in that they don't even make any insulin. Type 2 diabetics are insulin resistant in that their cell doors don't open because their insulin isn't working. They need insulin shots at times as well and many take pills to get their body to use the insulin properly.

Explain multiple daily injections (MDI, or shot therapy).

Initially we managed TJ's diabetes using shots. We would draw up insulin into syringes from a vial and then administer the shots he needed. It was at LEAST 4, but sometimes 5 or 6 shots a day, not including checking his blood sugar/glucose (BG) that many times or more with finger sticks and getting a blood drop.

The needle on the syringe is really small and just hurts right when it goes into the skin. It doesn't produce any blood because it only goes into the fatty tissue under the skin where there are no blood vessels.

For the first few months, TJ's schedule became very strict. Things had to happen at certain times of the day. He had to eat a certain amount of carbs for every meal, no more, no less. If he wasn't that hungry, we'd be feeding him cookies to get his carb amount up to the right point. If he was starving after that many carbs, we'd be trying to substitute cheese and ham (or other 'free' foods, aka 0 carbs), hoping that they would be enough.

If he had a snack or meal, he could not have ANY more carbs for 2 full hours. That schedule is hard on anyone, but especially hard for a toddler or young child.



What does a pump do to help?

Now with the pump, his number of sticks goes from 12-16 shots in 3 days to ONE! The one poke is to insert the cannula, or a catheter, a little plastic, flexible tube that stays under the skin. Then the pump administers tiny bits of insulin like an IV would at the hospital. The fluid insulin travels from the pump cartridge that houses all the insulin through a tube and into his fatty tissue just under the skin.

It monitors everything except his actual BG, although some pumps have a separate feature which can check your blood sugar every 5 minutes, 24 hours a day. 

Pumps simplify the process of delivering insulin and calculating the right dose for the right amount of carbohydrates (which, when digested, always turn to sugar). With shots we would have to count the number of carbs he ate, divide that by his insulin to carb ratio (how many carbs does 1 unit of insulin cover) at the moment, round to the nearest 0.5 of a unit, fill a syringe with that much insulin and then give him a shot. 

Now with the pump, we enter in how many carbs he ate into the pump electronically and it tells us how much insulin he will get down to the nearest 0.025 of a unit. We accept that and it delivers the insulin into his body. Done.

After we reset all his ratios and doses and fine tune exactly what he should be getting for his lifestyle, he will be able to eat whenever he wants, even if it's right after a normal meal.

Please comment and ask any questions that you may need clarified or want covered in the next blog post.

Thanks for prayers or donations for a cure. 









I Swear I'm Terrible at This

Blogging is SO hard for me and I don't know why. Maybe it takes too long to long in? I'm just making up excuses. I think of things all day long that I need to write down that TJ did or said and I never do. It makes me so sad because I forget and know I'll never remember things unless I write them down. I have a TERRIBLE memory. All my memories are only moments I've written about or take photos of. Sad.

TJ will be 21 months on June 11th. He's terribly close to 2 years old and that's WEIRD, totally weird.

He woke up one day about 2 weeks ago and decided tantrums were his new favorite way to whine and complain about anything. Welcome to the terrible two's, right? He would throw himself back and hit his head on the ground and then cry. Or roll around, kicking and screaming. Yeah it really happens. So that's been one big difficulty. He has started hitting when he gets angry and we discipline him for sure! I say, "TIMEOUT!" and put him in his crib until he calms down.

The past two days he's been playing with his crackers or his cars and I've heard him say, "No, No, Timeout!" Yikes. Well, son, if you would learn to behave, I wouldn't have to say that all day! :)

TJ adores the missionaries. He knows that they are Elders. That's what he calls them. They come over frequently to use our internet to submit the weekly numbers since they are District Leaders. TJ loves when they come over. Elder Treasure was doing the numbers on the computer and Elder Duke was standing there going through his planner to figure out their own numbers. TJ looks up at him and says, "aslfkj soeiryh slkd cars?" And then says, "Hand?" He grabs Duke's hand and pulls him into the living room to show off his toys. TJ then sets up the 2 toddler chairs, sits in one and pats the other for Duke to sit down. He kept showing him new cars or toys. Duke wasn't paying attention to TJ for a bit and TJ crawled up onto his lap and puts his face between Duke's face and his planner. Like, "Hello! Pay attention to me." It was so cute. Then they gathered their backpacks and put their shoes back on and TJ said, "Buh bye, Elders," without any prompting. So cute.

TJ learns so many new words a day, especially now that he knows how to say "What's that!?"

TJ sings and it's to die for! He'll sing, "ABCsdlkfjdlskLMNOP;lskdjSlskdjfWXYZ. Now I know my lskjflC's lsd;jlfksjldkfjslkdfjlskd me!" Or "Twinkle twinkle little star. How I lskder slkdj you are. Up above ;slkd sldkf wie high. Like sldkjeoiwhoqiheieoien sky. Twinkle twinkle little star. How I lskder slkdj you are." He's got the melody totally down. He'll also sing a verse or two of Wheels on the bus.

TJ could watch YouTube on my iPhone forever! He can navigate, twist and turn the screen, push play, back, etc. He knows his way around that thing. He watches a lot of Russian videos. Maybe he'll learn it. ;)

Sentences that he says often:
That one.
WHOA!!
I don't know.
Thank you,you're welcome. (as one word)
There's the ____. Bus, squirrel, car.
Yummy good (not just one or the other, BOTH)
Right there.
Catch it!
Here it comes.
It's coming!
Hi Mommy.
Hi Daddy.
Elders.
That's crazy!
Where did it go?
There it is.
Cool. (If he's wearing my sunglasses or a hat)
Get it, get it, get it. GOT IT!
That way.
What's that?

He loves watching his shows on PBSKids. He likes Curious George, The Cat In The Hat, Sid the Science Kid, Super Why, Dinosaur Train, Sesame Street, Elmo's World, Barney, and Caillou. Pretty much their whole programming from 8:30-2. Haha

He just learned to jump, like really jump off the ground and he gets pretty good air sometimes!

He's learning to count. He can say 1, 2, 3 and 8, 9, 10! We just got to get the middle ones. ;)

He loves swimming. He jumps into our arms and then says "Kick, kick, kick" and kicks his legs to get back to the side to jump again. He HATES the sensation of floating though. He thinks it's wrong to not touch the ground OR be held by a parent. Still working on that so I get a break when we swim.

TJ will play in the cars for hours if we would let him. He'll climb all over the two front seats and push every button, multiple times, readjust the seats, mirrors and A/C. He has a blast and will order me around to sit in different seats and to shut the door and to help him open certain compartments. It's such a fun place to explore, as long as it's not blazing hot outside.

He will be starting the insulin pump on Monday and I'll do a post about our daily lives and explain with pictures what the pump is and does for him. :)

That's all I can think of for now. So long.

He loves getting splashed with water and splashing others.

Tuesday, February 28, 2012

Jolyn Laney Photography

Lately I've been really getting into my photography. I love photography. It's fun and creative and scientific all at the same time. And every where I go I have my photographic eye on the look out for unique locations to shoot or a neat subject to capture. I need to revamp my photography website and when I do, I'll post the URL. For now, I'll just showcase some of my favs. Let me know what you think.
"Like" my photography page on Facebook. It's Jolyn Laney Photography. Thanks!
























Thursday, February 23, 2012

Update

It's been forever since I've written anything about TJ. It's totally my fault and he's changed so much in the past 2 months. He's so stinkin' smart. He's funny. He picks up on things so fast. He's anxious to learn and asks about everything. We can completely communicate everything, but why he needs 6-7 shots everyday. He knows enough words to understand what I say to him. I use the words I know he knows so that he can get it. He loves to read and sing. He loves Elmo. He likes to make us smile and laugh. He loves his daddy and misses him every day. He is the sweetest thing.
This morning he went through almost all 5 stages of grief when Todd left for work. Todd was saying "bye" and TJ was waving. Then TJ ran up to Todd and lifted his arms up with big puppy dog eyes. Todd puts down his bag and picks up TJ. TJ says, "daddy work," and points to the door. I pick up Todd's bag and we all walk out to the car. TJ's all excited thinking that he's going with daddy to work. Once we load Todd's bag and eventually Todd in the car, and I take TJ, reality sets in. Todd rolls down the window and waves to TJ saying "bye". TJ's smile fades. He's almost in shock and slowly waves back. Todd drives away and it starts.
1. Denial - "no"
2. Anger - a swing and a miss. fall on the ground, screaming.
3. Bargaining - can't really yet, thank goodness
4. Depression - then he was just sober
5. Acceptance - then once we got inside he said, "eat" :)
Throughout the day, TJ asks, "daddy?" and I say "He's at work." Sometimes he says, "work", sometimes "all gone". I've been trying to teach him what back means. He'll be back. I'll be right back. etc. Once he learns that word, life will be so much easier I think.
He's a pretty good kid. This morning he made a mess, not huge though. He grabbed a box of bandaids and flipped it upside down and shook it so they all came out. Todd and I both saw but we weren't concerned. Usually he makes a mess and then likes to clean it up. He'll carefully put them all back in (until he loses interest of course). He'll take out all my cookie sheets and muffin tins out of the bottom of my stove, but he'll put them back in. He's kind of an organizer. He's pretty particular at times and will straighten or work on something until it's just right.
With the whole diabetes thing, I don't look at my kid and think, "He's got diabetes." I didn't think I'd get to that point, especially not this fast. It's been 2 months and 3 days since he was diagnosed. Weird. That's it?? That long?? I just feel like he's just got this thing we have to do. It's weird to think when we didn't have to regulate everything he was eating and counting carbs and making sure we got exercise!! When I see other parents just give their kids snacks right after lunch, I think, "It hasn't been 2 hours yet!" and "Did you count out how many Goldfish that just was?" and "They can just eat a cookie? No big deal?" It's kind of strange how your mind changes.
Some of the rules we have (because I know some of you are curious):
1. Always ALWAYS count carbs. It's simple math really and I've gotten really good at long division again by hand.
2. If TJ has carbs, we have to wait at least 2 hours until he has more carbs. If he's hungry, he can have free foods. Those are like, veggies, cheese, and meat. He can eat all he wants of any free food no matter what time of day it is.
3. He gets a finger prick before every meal and at bedtime. Sometimes also at his 2 snack times or if he's just acting weird and I think his blood sugar is low or high. It ranges between 4-6 times a day.
4. He's got a blood clot still in his right leg and has 2 extra shots a day because of the Lovenox (blood thinner). This also makes his finger pricks bleed longer and makes me very nervous just letting him run and play because if he falls, it could potentially be an ER trip. Or he could have major internal bleeding which is even scarier.
5. We dose him depending on his current blood sugar level and on how many carbs he eats for the meal.
I feel like that's it, but there's probably more that I do that I don't think of anymore, like it's subconscious now.

Photos:
I love my camera.

TJ loves puddles.

Handsome boy.

Look at his teeth!

Business man

He loves elephants not matter what shape or size.

Splashing at the zoo. 

His girlfriend Emmy

His mentor and friend, Aiden. They are buds.

Cousin Rock and Caca. Too bad Grandma Caca didn't have footie PJ's too! Bummer. But she came to visit twice in the last month or so. YAY!

We've had so much help, meals, babysitting, just asking how we are, emails, advice, visits, and an anonymous person who helped us pay off the rest of our student loans. Thank you to whoever that was. Thank you. Now we are just in debt to the hospital and doctors.
We've been so so blessed. I thank the Lord everyday for friends and family and people who help and care about us.

Christmas 2011 - Crazy but great

Now that it's been a few months since Christmas, its about time I blog about it!
It was so fun to watch TJ open up his stocking and pull out all the toys. He really liked them!


My cute cute sis with her sign.

My lil bro. We did stockings before church and presents after. Our church starts at 9.

The tree our friends loaned us since we weren't going home for Christmas anymore. We got all their decor and got to have a tree to put the presents under. My lil sis said, "We need to have a smaller tree and a smaller area so it looks like we have more presents!" haha

The tree taken with my new CAMERA LENS!!! Thanks mom and dad!
It is so clear! And has a much shallower depth of field aka the ability to have a blurry background.

So common, but one of my new fav photos. This is right out of the camera.

After church time for naps and playing with the camera.


A fun tradition that we started this year. You take scrapbook paper and write down memories from the year or what you like about your loved ones or your favorite Christmas things. Whatever. You roll it up and put it in a clear ornament. Todd and I both filled out some strips but we don't know what the other put. It's kinda fun that it's a secret. :)



My sweet recovering boy.


Love this.